November 11-17, 2015

They decided to give Anna one more chance off CPAP before committing to the scope. I'm not sure why - as it was very apparent to me she wouldn't be able to do it. I gave her a bath on Wednesday with it off and she was working to breath, just in those few minutes.

So Thursday morning they had her off cpap for 20 minutes before they put it back on. No surprise here! She has been on a cpap peep of 6 and sometimes a little oxygen. In the afternoon, the other ENT doctor came up and did a bedside scope. He agreed that she needed to be booked for a rigid bronch scope to see her entire airway.

Friday was a busy day for Anna! She started the day with a visit from her occupational therapist. Her muscle tone is very normal and she was very happy with how alert Anna is. ENT and General Surgery both came up a couple times to get my approval for the surgery. She also had a hip ultrasound and xray as they haven't been looked at since she was first born. They are just trying to decide when to start bracing/casting them.

Saturday and Sunday were fairly standard weekend days. Not much happens besides snuggles for Anna! She got some special first snuggles from her Beppe and Grandma!

Monday was another quiet day. I had a big long snuggle with Anna and waited (impatiently) to find out when her surgery would be. She had bloodwork done, so she is all prepared for surgery.

We started Tuesday off with a nice and warm bath and finished it off with a big snuggle! It was another quiet day in the pod. We were at home getting the kids ready for bed when we finally got word that her surgery will be Thursday at 3pm.

Please keep Anna (and us) in your prayers these next couple of days. We aren't sure what the outcome of the surgery will be. If she will need a trach or not. Please pray that the surgery may go well and the doctors may have all that they need.

I lift up my eyes to the hills.
From where does my help come?
My help comes from the LORD,
who made heaven and earth.

He will not let your foot be moved;
he who keeps you will not slumber.
Behold, he who keeps Israel
will neither slumber nor sleep.

The LORD is your keeper;
the LORD is your shade on your right hand.
The sun shall not strike you by day,
nor the moon by night.

The LORD will keep you from all evil;
he will keep your life.
The LORD will keep
your going out and your coming in
from this time forth and forevermore.
Psalm 121