October 16-20, 2015

In the afternoon on Thursday, they had to move Anna's iv line as it was starting to swell and had a terrible time getting one in. It took 8 tries and ended up being in her head. While Ryan and I went for dinner on Thursday night - Anna decided to extubate herself :S She was on cpap again when we got back - but really working to breath. They tried various different ventilation but she was working way too hard and desating often, so they ended up having to re-intubate her. They also had to move that iv line that took so many tries in the morning.

Friday, we continued to be under isolation as we were waiting for one more test to come back from virology. We also got the news Friday evening that they got a positive for a bacterial infection in her windpipe area. She started more specific antibiotics (instead of generalized ones). She also had an EEG done of her brain - just to make sure she is not having seizures. She is still needing to be suctioned often. After being restful all day again, she was unsettled in the evening so they sedated her again.

On Saturday Anna was wide awake when Lorissa came in the morning. It was SO nice to see her feeling a little better. Her last virology test came back negative, so we could lose the isolation gear! She was comfortable all day and didn't cause too much trouble until her iv started leaking that evening. They had to move it again - this proved difficult again and took 5 tries. Ryan stayed the night close by in case she was unsettled - but she finally had a good night and did not end up needing to be sedated.

On Sunday, Ryan was with Anna all morning and she was settled (besides needing occasional suctioning). The nurse became concerned when she could not hear breath sounds from her right side. She had been positioned on her right side more because of the placement of her iv in her head. They then decided to get the picc line put in today (since getting an iv line in has been such a problem), and then when an xray is taken to check placement of the picc, they could also check out her lungs.
She started the picc procedure off with a bang by doing a large desat when they gave her the sedation medication. They got the picc line into a great position - so we are hoping it lasts the whole duration of her antibiotics. The xray results came back to show her right lung as being somewhat collapsed and having pneumonia.

She was very tired from the picc procedure in the afternoon and let the machine do a bunch of her breathing for her. Lorissa was able to (finally) enjoy a snuggle with her in the late evening! The first time since Wednesday morning.

On Monday Anna was awake alot; looking at us with her big eyes. She still needed fairly constant suctioning, but was pretty comfortable to just look around. She had a head ultrasound and an ECHO done. Her PDA has not changed thankfully - as sometimes they can reopen when they are sick. Lorissa was able to have a big cuddle before heading home to her own bed.

Tuesday, so far, has been a quiet day. Anna was awake so much yesterday, I figured today she would sleep alot and she has. We had a big snuggle this morning and I hope to give her a bath - since she is getting a little smelly. I think it's been almost a week since she's had a decent scrub. She will continue her antibiotics for 10-14 days (started Saturday). The plan right now, is to try extubate her on Thursday morning and put her on cpap for a few more days, but we will see how the next couple of days go.

We are just so thankful to see our little girl starting to feel better. It is so scary to see how a little bug can affect them! Keep praying for her recovery!

The name of the Lord is a strong tower; the righteous man runs into it and is safe.
Proverbs 18: 10